Below are a number of ALS and FTD-focused resources.
FTD and ALS Resources and Associations.
-
ALS Therapy Development Institute
The ALS Therapy Development Institute (ALS TDI) is the world's foremost non-profit drug discovery lab focused solely on ALS.
-
The Association for Frontotemporal Degeneration (AFTD)
AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure.
-
Target ALS
Founded in 2013, Target ALS is a 501(c)(3) medical research foundation committed to the search for effective treatments for Amyotrophic Lateral Sclerosis (ALS).
-
ALS Association
To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
-
The FTD Disorders Registry (FTDDR)
The FTD Disorders Registry (FTDDR) is designed to bring together the frontotemporal degeneration (FTD) community. This means persons diagnosed, their family members, caregivers, and friends as well as clinicians, scientists, patient advocacy groups, and the pharma/biotech industry.
-
Everything ALS
EverythingALS is a patient-focused non-profit, part of Peter Cohen Foundation, a 501(3)c organization, bringing technological innovations and data science to support efforts -- from care to cure -- for people with ALS.
-
Northeast Amyotrophic Lateral Sclerosis Consortium® (NEALS)
NEALS’ mission is to translate scientific advances into new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and Motor Neuron Disease (MND) as rapidly as possible. NEALS functions as an academic research consortium, a contracted research organization, and a resource tool for ALS community.